colitis and crohns marketing web sites

The link below shows a primitive "chart" of some ibd sites and their pharmaceutical connections.
(The sites include: www.crohnsandme.com, www.crohnsonline.com, www.living-better.com, www.livingwithcrohnsdisease.com, www.livingwithuc.com, and www.managinguc.com)

An earlier post mentioned how many pharmaceutical companies create crohn's and colitis web sites to collect marketing information. To be fair, it is a way for them to collect potentially valuable information from patients.

However, there should be more disclosure about *why* they are collecting information, especially for drugs with a black box warning.