Naomi Devlin, started using the specific carbohydrate diet when her celiac disease didn't respond to a gluten-free diet. In addition, it has helped her son who was on the ADHD scale.Read More
Bam! And just like that things are changing.
The eventual goal of this website is to make it unnecessary. This site and similar ones, SCD cookbooks, and the collective knowledge on email lists rightfully belongs in the medical community. I'm giving the site about two to three years before it's obsolete:)
An announcement this week from Rush University Medical Center in Chicago indicates the way IBD treatment is headed:
The second study which is a dietary trial is looking for 90 participants with Crohn's disease to see if diet adjustments as well as dietary food supplements promoting the growth of good bacteria might help control flare ups.
"We're trying to get improve the mix of bacteria in the intestines of patients with IBD. Imagine making a picture with different colors," said Dr. Ece A. Mutlu, gastroenterologist at Rush and principal investigator on the study. "It could be terrible or harmonious depending on the composition and quantity of certain colors. We're trying to create a harmonious environment in the intestines with the right types of bacteria." [boldface added]
source: Rush University Medical Center
(Note: I don't know what type of diet they will be using.)
For the most part, most of my ""IBD/SCD communication" takes place through email or the phone. In one sense, I'm behind the screen, away from the "action." However, June 1st was a much needed eye-opener.
In 2001, members of the orthodox Jewish community in Brooklyn invited Elaine Gottschall to speak about inflammatory bowel disease and the specific carbohydrate diet. At the time, in 2001, the gastroenterologists literally laughed at the idea of intestinal flora playing a role in IBD*. However, Elaine had talked with many members of the orthodox community over the phone, helping them use the SCD to regain control of their health. When she arrived at the podium, nearly five hundred people sat before her.
(* Intestinal flora is now viewed as a key factor in IBD.)
In its place, in 2004, he started Remicade and Immuran. The Remicade stopped having an effect in 2007 and the doctor began treatment with Humira which resulted in great physical pain. As David described it:
Last week, Andrew Pollack of the New York Times wrote that the FDA would investigate whether Remicade and three other drugs could increase the risk of cancer in children.
This is long overdue. As mentioned in March, here is Canada's stance on the pediatric use of Remicade:Read More
If you're contemplating trying the specific carbohydrate diet, definitely read the Eating SCD: Eating my Crohn's into remission with the Specific Carbohydrate Diet.
As well as many delicious recipes and tips, Paul tells his journey with Crohn's since being diagnosed in 1983. It involves many medications, multiple surgeries, and an ultimately successful ending when after starting the diet in 2005.
For IBD patients, little data is available on Remicade use for more than one year or more than 8 doses. A non-pharma funded study published last fall examined 50 patients on long-term Remicade and found a mix of results.
The bad news: 6% of the people developed malignancies (solid tumors) and 32% experienced at least 1 adverse event.Read More
Anecdotally, regular SCD (specific carbohydrate diet) users report healthy cholesterol levels due to dietary changes--even though this goes against the grain (bad pun) of conventional wisdom. Now mainstream science is beginning to back up these claims.Read More
On May 1st, the Canadian publication Homemakers magazine featured an online article titled, "Grain-free cooking with the Specific Carbohydrate Diet."Read More
Crohn's and Omega-3 Fish oil study funded by Pharma companyRead More
May 14, 2008
Kavanaugh's La-Z-Boy Furniture Galleries
110 Faunce Corner Mall Road
North Dartmouth, MA
Tickets are $50 per person, and can be purchased at www.gottschallcenter.com.
Jane D. started the specific carbohydrate five years ago after suffering from irritable bowel syndrome for 15 years. A former nurse and currently a minister, she shares her experiences, including her first months on the diet, and advice for starting out. In order to help others with the SCD, she co-moderates the scd_newengland email group along with Laura Aronson.Read More
This week Jodi Bager and Jenny Lass released their new specific carbohydrate diet cookbook: Everyday Grain-Free Gourmet: Breakfast, Lunch, and Dinner!
To make this cookbook, Jodi & Jenny combined their expert cooking skills with personal understanding of how to cook when working with serious digestive ailments. (Jodi and Jenny had been diagnosed with ulcerative colitis & celiac disease, respectively).
This is an important addition to the collection of SCD cookbooks! (I placed my order today:)
We're going to delay our look at the Lancet to do a quick segment on the take-no-prisoners spirit of Remicade's marketing team. Once they decide to do something, they go for it. Their tactics aren't for the faint of heart. Back in 2005, they applied in the US & Candada to have Remicade approved for children.Read More
Barely two months after being approved for Crohn's disease, the news for Tysabri continues to worsen. Three weeks ago, deadly melanomas were reported. Now the FDA has posted warnings about serious liver damage after a single dose. The manufacturers (Elan and Biogen) have sent letters directly to doctors involved in its use.Read More
Another mom has shared her specific carbohydrate diet/autism experiences via the blogosphere. The blog helps give an idea of how the SCD can help . . . and the effort involved. The blog doesn't sugar-coat the experience . . . or the positive benefits:)Read More